Priority Setting Partnership - Communication and swallowing difficulty in critical illness
5th May 2026
The University of Technology, Sydney are partnering with the James Lind Alliance (JLA) to identify the top research priorities about communication and swallowing difficulties after critical illness.
They want your help to short-list questions that you would like future research to answer about communication and/or swallowing difficulty during or following critical illness.
What have they done so far?
They asked people to submit questions about critical illness communication and swallowing difficulties for future research. They had over 1300 questions! They have now condensed these questions into 28 research questions on communication and 30 questions on swallowing.
In this second survey, they want your vote on which questions are most important to you.
Who can take the survey?
- A person with lived experience of being an adult in ICU and having a communication and/or swallowing difficulty during or after being in ICU.
- A family member, friend or support person of a person with lived experience.
- Health care professionals with experience of supporting people with communication and/or swallowing difficulty (during or after care in the adult ICU).
How do I participate?
- Read the longlist of questions.
- Select up to 10 questions that you feel are the most urgent or important. You can pick 10 questions about communication and 10 questions about swallowing
- The survey is currently available in 9 different languages (English, Chinese, French, German, Portuguese, Spanish, Hindi, Arabic and Russian). The survey in Japanese will be released soon.
This project has been reviewed by the Ethics Secretariat at the University of Technology Sydney.
You can take part in the survey via this link: https://utsau.au1.qualtrics.com/jfe/form/SV_3VOERAEslhFr5zM
How can you help?
Please share this with colleagues, patients, and networks who might be interested
They will be collecting responses for this survey until 29th May 2026. If you are interested in attending the final workshops, you can submit an expression of interest within the survey.